Quick link to my Yes2Life fund page - phase 2!

https://www.justgiving.com/dave-twomey-2

Thursday, 26 January 2012

100Km Challenge Progress Report

I managed to run just over 4 miles the other day (7km+) in training without too much trouble. Legs getting bit jellified - not surprising considering I dont eat carbs or grains! - but other than that on track I think with fitness! First race is 10km on Feb 19th with my dear friend Shelley. If anyone else wants to run with me this year my dear mum has offered to pay our entry fee's so give me a shout to my email maustokyo@gmail.com or text me +44 7896 868099! Find a race and I am there!
Keep the pledges coming!!!

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RECOMMENDED

Mandala Yoga Ashram - anyone in the UK who wants to go deeper this is the place to go. I am going back in february for Karma Yoga week and longer. Cant wait!

Considering a trip to India too lately... love to get to the Satyananda Ashram in Bihar... their books are FANTASTIC!

Monday, 23 January 2012

Diary entry 12/6/2011

My Dad said I should include more of the personal musings I often include in my letters to him so here goes ... erm ... something...

Dec 6th
After a mostly self-inflicted lovely but hectic day before - presents, treatment, running, then a comedy club with some family and friends - and not enough sleep by half somehow today I feel a real power & strength leaving for Japan. Writing Christmas cards I realise that this year has actually been utterly incredible really - my trip to the Lake District with the Willow Foundation, my (albeit belated) Japan trip in July, Mauritius with my father and lovely brother and sister, lots of wonderful support from my family in the UK & of course the most amazing one of all my alternative treatment fundraising success. When I think of all that the challenges I (it feels more like we now though) faced throughout the year: 2 months of chemo, my ill-fated colostomy reversa leading to the very disappointingly (at the time, now it doesnt seem to matter at all) cancelled japan trip in May, 3 visits to Accident & Emergency including rudely interrupting a hatha yoga courseI didnt even get to start at the ashram (quite the opposite physically I can tell you!) - just fall away into insignificance. I find myself with only one sentence hanging in the air, like a clean sock tumbling from its apex in the dryer: I wouldnt change a thing! If I did I'd have to give up the most incredible thing - the knowledge that I am loved & the feeling of being supported when a hippopotamus-like load is balanced precariously on your state of mind. The stress destroying positive energy in the comments and generosity of you all - family & friends across the globe - has been nothing short of overwhelming, allowing me to invest in my body even so deep as at a cellular level with some of the things it has given me the purchase power to do. And guess what? … digestive troubles aside I feel fantastic for it! Finally my fitness and energy levels are getting back to around June 2010 levels, the last time I was really physically fit enough to run 30 minutes. I have a long way to go but its a start…

When I think of my nephew Louis' cycling efforts raising over 1000 pounds so far, Josh & crew in Tokyo raising over 1500 with the help of all my amazing friends out there doing a party in my honour, plus all the individual donations and comments I feel something really intense happening. The earth feels like its moving, but around me & in support of me rather that falling away from under me - how I feel when I am buried in the mud of chemotherapy - or that the ground has given way beneath you - how it feels when you're suffering the post-op agony of major surgery. To the backdrop of that mire the kindness of this last year takes me far beyond thoughts of 'why me?', 'did I do this to myself?', 'what did I do wrong?', that so many fellow cancer patients seem to suffer with … I am left with the insight bursting through that my cancer far from being a curse is actually a gift - granted wrapped in a rather displeasing box. With it came unending love from my family, unfaltering and sometimes surprising support from friends even thousands of miles across the other side of the world and of course the grateful realisation that I am still one of the lucky ones - one of the luckiest I sometimes think - to not only have all this but also the beauty of natural all around me every day, which I appreciate like never before.

Thank you everyone from the bottom of my heart where I discover a little pulsating ball of increasingly bright light of a soul you know as Dave quietly resides, biding his time. For what only time will tell, but time is something we all have - NOW is never ending.

http://vimeo.com/34236830


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ps. some books you might like...
Benjamin Hoff - The Tao of Poo & The Te of Piglet - officially my favourite book ever so far!!!
Eckhart Tolle - The Power of Now ... wonderful handbook how to live more in the present
Swami Nirmalanda - Yogic Management of Cancer ... has helped me so much this year!

Wednesday, 18 January 2012

NEW YEAR, NEW CHALLENGES!!! I NEED YOUR HELP AGAIN...

Happy New Year! After a glorious month in Japan & 2 successful fundraising & inspiring events unfortunately my Year Of The Dragon started with rather disappointing news that my lung tumours are still growing, albeit only moderately quickly. So, another year of my anti-cancer challenge has begun, hopefully paired up with a whole lot of joy & creativity through some fundraising, learning and laugh-like-a-child fun. With your help. Unfortunately my fund is rapidly diminishing, I was informed by YesToLife that only 5000GBP remains & I have an important 2500GBP dental surgery to clean up chronic infections coming up next, yet another marker for my cancer and possibly the reason why my immune system seems unable to see my lung tumours, while being on the face of it very strong. I haven't been ill (except post-op or post-chemo of course) since before I was diagnosed & my allergies (caused by an unbalanced immune system) have all but disappeared. In fact this last few months I have been feeling fantastic, thanks in large part to you guys & girls and the money for the supplements, treatment and nutritious food I have been able to buy.

So, I have decided to combine raising money for some charities dear to me with hopefully continuing to add to my treatment fund pot. I would certainly like to continue the vitamin c & I have some other ideas to try too. Chemotherapy is still on hold for sure. I have decided to treat myself not the scan. Let's hope it works! So, this year I HAVE SET MYSELF THE CHALLENGE OF RUNNING 100KM OVER THE YEAR IN RACES on road or trail, which I hope to manage via a couple of 5k's, several 10k runs, a 15k or 2 and hopefully a half marathon towards the end of the year. I am thinking marathon next year maybe even (!!!), inspired by a fellow cancer survivor who did it last year just after getting her Stage 4 breast cancer diagnosis. What a trooper!

My first race will be February 19th in Kent so feel free to come and support if you are in the UK and can spare the time. My goal is to raise 10,000GBP or more over the year, so that means 100 people sponsoring me 1GBP per km. This money will go towards my treatment fund but also to some other wonderful causes close to my heart. The first is the Multiple Sclerosis Therapy Centre in Canterbury, currently trying to raise a million pounds to build a smart new centre for patients all over Kent to receive Hyperbaric Oxygen (also useful for cancer patients - I have tried it!) providing not only relief of the debilitating symptoms of this horrible disease but also giving those who cant work and who are often in a wheelchair somewhere they feel a real sense of community. I will also be donating a portion of the money raised to Willow Foundation who helped me have a wonderful weekend in the Lake District last year and who provide dream trips & days out for seriously ill young people. The final part will be donated to an orphanage in Japan, working with kids who lost their parents in the tsunami of 2011.

Please email your name, email address & pledge (e.g 1GBP per km) to: dave@mymtokyo.com - I will be collecting the pledged amounts according to completed distance in July and November.

e.g.
Dave Twomey . dave@mymtokyo.com . 1GBP
Stella Twomey . xxx@stellatwmey.com . 0.5GBP

Sunday, 27 November 2011

OVER THE 20,000GBP MARK!!!!

OH ... MY ... GAWSH!!! 

THANK YOUUUUUUUU!!!

Once again my friends & family have raised the bar. First my Dad invites me over the Mauritius where he has been in retirement for 20 years now to have a holiday. Totally glorious, hanging with him, my step mum and my lovely lil' brother and sister in the paradise that it is.


Then I hear that my half nephew Louis has raised over 600 pounds for my fund... LEGEND! Great work Louis... am so honoured! Then just this week I received the payment of funds raised from a club event held in my honour at Module in Tokyo.

Over 1600GBP the total raised!!! so, we finally made the 20,000 pounds mark & far exceeded it now... that is one serious achievement...

AND ITS ALL DOWN TO YOU ALL!!!

THANK YOU SO MUCH Josh, Conoley, Craig, Bob, JZ, and all other supporting djs, performers and punters who came to support me!! A massive & well needed boost as I have used over 14,000GBP so far for my treatment since August. Almost as much of an achievement as raising it ... crikey... where has it all gone??? Mostly inside my cells I guess .. they must be very happy (I know I am!!!). Let's hope the scan in December will give us something to really smile about... I dont expect much at this stage but some small indications at least that the lung tumours are starting to disappear would be nice...

ONCE AGAIN this is one seriously Happy Dave!
I WILL beat this thing...

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The kind words Josh wrote about me for this event follow. As my Dad & I agreed, the things we do we certainly dont for recognition - as Mother Theresa once said: 'The miracle isnt that we do these things but that we LOVE to do them!' - BUT it sure is nice!!! ...

''Dave Twomey has been an important part of the electronic music scene in Japan. His passion, love for music, support and dedication have helped to fuel the scene with positivity. As Dave has given so much to us, it is time for us to give back to him. "Say Yes to Life" is a benefit event, to be held at module on 11/19, which will support Dave and his fight to live. Not only will all proceeds be donated to Dave, we hope all of you will come with friends and dance the night away sending positive energy to Dave. Please join us for a special night of music and friends in support of Dave Twomey.''

''日本のエレクトロニックミュージックシーンで精力的に活動してきたDave Twomey。11月19日moduleにて開催される"Say Yes to Life"は音楽に対する情熱と愛情をシーンにそそぎ込んできたDaveへの恩返しのイベントとして、闘病中の彼を応援するために、全ての収益を寄付します。Dave Twomeyのために、大勢の仲間が集う一夜に、是非ご参加ください。''




Much love from the Key & Star of the Indian Ocean,
d.

CHECK THE TOTAL!!!

Sunday, 30 October 2011

Update: Toxic s*@t!

I am ok ... phew. Tired this morning though. Struggling with sleep and digestion these last few months. I think I have had slept through the night about 4 times in the last 2 or 3 months. Lucky I dont go to work (though I do volunteer sometimes at the local Age Concern Centre)! Am still busy with my daily ozone/hyperthermia sessions (seems to be getting hotter and hotter!!!) combined with half an hour of comedy to distract me from the heat. Laughing is key my doc at the clinic says so if anyone has any files on their hard sics they wana burn to disc for me would be much appreciated. My address is 4 chater court, walmer, kent, ct147xr UK. Also keeping up on my supplements, visits to Brighton (thanks for accompanying me the last time Anne-Marie!), running, yoga, tai chi, chi gung, etc as well as categorically ignoring the advice of a supposed healer in brighton at a dojo in Brighton who said exercise at home on own was a 'waste of time'. I told him where to go trust me... just goes to show not every doctor/healer is good for you - you also have to know when to say NO!!! Negative energy AAAOOOUT!!!

Got back from my September trip a week ago: home to Bristol for Penny Brohm cancer care course & to see my old friend Jonny

(with friend Jonny from Uni - weather was amazing!)
then Devon for my old uni friend Rob's Royal Marine wedding then to the ashram for a week incuding a course on the Mandukya Upanishad (heavy but fascinating stuff) finally dropping down south via the Brecon beacons & then Stonehenge to Brighton for more vitamin C...phew!


Good to be back on terra firma proper (though the ground is not far away from my badass (ironic) car-cum-stapler (thanks Jonny!). hell of a lot of miles covered with all my gear in the back but a very positive trip (I almost wrote 'tour' - force of habit!). Got into some pretty esoteric stuff at the ashram ('reality is a circle whose centre is everywhere & circumference is nowwhere' - nice!), as well as a mini drama ('there is NO fish at the ashram'! honest mistake but o, foolish me) and some very positive yoga and chanting (reminds me of singing hymns at school except the words are so much more profound, oh and I actually enjoy it now!) and of course some so-called selfless work. I cook every day now at home (sometimes twice or thrice a day) so was fun to help out in the ashram kitchen putting together my indian spice mix's etc. Always a pleasure to be in Rama the gardener's place of work too admiring the rainbow chard 'forest' amongst others! A greens-addict paradise in the polytunnels at this time of year to perfectly compliment the moss paradise it is inside & around the surrounding area of the ashram. From my day down by the river... (more on Facebook)


Other news, am still having an awful lot of trouble with my digestion ... keep smoking people. You might get colon cancer then you can have a botched op which then leads to your having to go to the toilet over 10 times a day for god knows how long! 6 months plus after my colostomy reversal but still ... uuugh... so tired of this shit (sorry to be so literal).

Recommendation from thehighly recommended Peter Hinde. See how we go with these...
Pretty interesting reading. They say discovering this stuff pretty much wiped out counytwide Dysentary from the UK.



http://www.kiki-health.co.uk/products/supplements/Natures_Biotics.asp

Also going to get myself some reiki next week and try some gut focused hypnotherapy. Apparently IBS is so common in the US here is quite a body of research andf work on this...
I will try (almost) anything (i might not tell you about it though!!!).

Om Shanti Shanti Shanti...
(The Hum of the Universe Peace Peace Peace) - apologies if this is crap translation

ps. keep donating please people. Funds running out slowly but surely... well over 10,000GBP spent already

So far:
3 x 6 days vitamin c etc intensive approx. 6500GBP
Pure & alkalised waterfilter 400GBP
Nutrition & supplements including nutritionist appoinments well over 2500GBP so far
Ozone/hyperthermia equipment 1500GBP
Regular Brighton visits for vitamin C approx. 1500GBP
Yoga/chi gung/tai chi classes 150GBP
Acupuncture 300GBP+
Ashram stay & course 300GBP
... the list goes on. Thank you all so much!!!!

Sunday, 25 September 2011

UPDATE! Back in Deal (but not from tomorrow)...

Went for bike ride and swim already this mornin... now watching the rugby. Weather has been glorious ... Back on retreat next couple of weeks plus friends wedding in Devon. Should be good... Excited to go on bit of a road trip in west country. Am very skinny right now (57.8kg last time I weighed!) but i feel amazing. Some incredible pics from Deal (my hometown) this last weekend...


Fittest i have been since i was in the rugby team at prep school when i was 13! Long time ago. Plus vitamin c high dose def giving me some mad energy... Lets hope it is giving the tumours a hard time too! Really hoping scan at end of November will show some stability of disease finally. At moment lung disease is marching on slowly but not without threat. according to last scan at least ...scary but just try to keep moving forward and not taking too seriously what my oncologist says. Her prognosis is just so depressing and just shows how limited the  conventional response is. Chemo or nothing! Rubbish...

 So much to think about, or feel more like. Too much thinking never helped anyone if you ask me, its my intuition i am trying to tap into. Private yoga classes with the wonderful Loretta, acupuncture, etc all helping. Really learn what my body needs when it needs it. workin on that with funds and various treatment i am able to do with it. The home sauna and ozone is feeling AMAZING every morning... this is me in Brighton in 'the tank' (sorry bout the grim face!). The one I have at home is similar but more like a tent... still bloody hot!!!


Some pics from my 3 weeks of treatment in Brighton paid for most generously by some of YOU (see below). Sorry no pics of me being intravenous'd! YUCK!!!
DT

Devil's Dyke, Brighton

Sunrise 6am

Brighton Beach

THANK YOU!!!

Monday, 12 September 2011

15,000GBP REACHED!!! OMG!!!! (update)

Total flippin' A-MAY-ZING! Thank you all so much for your efforts spreading the word (i take my hat off to social media for the first time, 15,000 pounds in 5 days is just crazy!) & fr all your wonderful donations and messages. Truly touching and I have already been actioning some of the things I wanted to get done treatment wise. I have also ordered the home ozone/hyperthermia kit for the princely sum of 1400GBP (!!!) so I can now do that every day! INCREDIBLE! (throw that evil cancer AWAY!). I recently saw my oncologist with my latest scan which shows the lung tumours still steadily growing (progonisis 3 months to 5 years according to her!) so this money really is becoming more and more essential... chemo alone will not work. even she admitted that. so, here goes...

HOLISTIC TREATMENTS FULL SPEED AHEAD!

The first 3 weeks treatment bill of 6000+ GBP will soon be refunded back to my dear mother sometime very soon from the kind folks at the YesToLife offices using my funds raised (that YOU raised! wow!!!) so that's really just wonderful. Since my diagnosis had to pay for my original privately done scans, early holistic therapies and a private operation to reverse my colostomy (not a fun time, I am still suffering from the repercussions of somewhat) totalling well over 7000GBP plus all the other necessary foods and supplements I have needed thus far, so this rebate for her is a godsend! Thank you all!!! I also now have all the requisite items of equipment for my kitchen of health (thats health not death you ready-meal-lovers!!): masticating juicer, slow cooker, nut grinder, etc and all the organic vegetables (YUM YUM YUM) I can get down me (though I am only allowed the green ones really due to sugar content!). Another big cost the burden of which is now gone is for my daily vitamin c at 7 pounds per day (i take up to 7000mg of the wonderful immune boosting stuff!). I am now on about 40+ pills a day PLUS 40 or so B17 full apricot kernels, 'natures chemotherapy'... hoping this all helps! phew! 

Here's some more info about ozone & hyperbaric oxygen therapy (OR here), for your curiosity. I had been going to the MS Therapy centre in Canterbury for some time before starting the ozone at Vision of Hope. Both seems fantastic and there is no doubt at all that the MS Centre (mainly for MS sufferers of course) is an amazing charitable cause that deserves your support for the support and care it gives people with this debilitating disease... I am planning a 'Pamper Day' in Deal for charity sometime soon, and they will be one of the beneficiaries! There are also plans afoot to do some money-raising events around the world. If you can help please drop me a line!!! anything is a help!!!!more on that soon...

COMMENTS POSITIVELY ENCOURAGED!!!